Scaling up PAROLE-Onco+: The care and service partnership for patients and their loved ones affected by cancer to improve their experience throughout the care trajectory – Priorité Patient
Scaling up PAROLE-Onco+: The care and service partnership for patients and their loved ones affected by cancer to improve their experience throughout the care trajectory – Priorité Patient
Scaling up PAROLE-Onco+: The care and service partnership for patients and their loved ones affected by cancer to improve their experience throughout the care trajectory – Priorité Patient
Scaling up PAROLE-Onco+: The care and service partnership for patients and their loved ones affected by cancer to improve their experience throughout the care trajectory – Priorité Patient

It is estimated that in 2021, 57,500 Quebecers will have been diagnosed with cancer, which represents 158 new cases per day. This number has been increasing for several years and is expected to increase further in the coming years due to delays in screening caused by the pandemic.

It has been shown that, in the Quebec health network and across Canada, emotional support is what is most lacking for people affected by cancer (PAC). This lack is even more important in the context of a pandemic where emotional support and accompaniment are expected and hoped for by patients. To meet this need, accompanying peers (APs) are integrated into the clinical teams of health and social service institutions. The APs are patients, therefore people who have experience living with cancer and who have also acquired experience using health services by interacting with health professionals. They use this knowledge to help PACs (including parents of children with cancer) have a better experience with the disease and their interactions with the health care system. By becoming a AP, they turn their experience into a resource available to others, which contributes to their own well-being.

This project aims to offer, in 9 institutions in Quebec, accompaniment by APs for different types of cancer, to find the best conditions for integrating them into clinical teams, and to evaluate their effects on the experience of PACs, the health of the population, the efficiency of the health system and the well-being of professionals. In addition, the economic value of integrating APs into health care settings will be assessed from a health system perspective. This project will therefore test the AP model for different sectors (adult and pediatric), different types of cancer (prostate, thyroid, gynecological, colorectal, lung, hematology-oncology, and breast), different populations (male, female, parents), different settings (regional and urban center) and different structures (CHU, CISSS, CIUSSS). It will collect data on the effects of APs on several levels and evaluate the value of their interventions. This project will also contribute to changing the culture of the institutions by promoting patient involvement at the clinical level.

In addition, it will pave the way for the implementation of the PAROLE-Onco Program throughout Quebec, which will allow PACs to be accompanied by APs and improve their care experience. This new knowledge will allow for the development of strategies to share experiences between different institutions with the support of community groups, and to share them with other Canadian jurisdictions and other countries around the world to implement APs in their clinical settings.

Principal Researchers

Université de Montréal

Co-applicants & Users

CHU de Québec - Université Laval
Lynda Bélanger
CHU de Québec - Université Laval
Karine Bilodeau
Université de Montréal
Marie-Claude Battista
Université de Sherbrooke
Maude Laberge
CHU de Québec - Université Laval
Catherine Régis
Université de Montréal
Mélanie Lavoie Tremblay
Université de Montréal
Djahanchah Ghadiri
HEC Montréal
Thomas Joly-Mischlich
CIUSSS de l'Estrie - CHUS
Patrick Richard
CIUSSS de l'Estrie - CHUS
Mado Desforges
Patiente partenaire
Marie-Andrée Côté
Patiente partenaire
Israel Fortin
CIUSSS de l'Estrie - CHUS
Julie Lemieux
CHU de Québec - Université Laval
Brigitte Poirier
CHU de Québec - Université Laval
Jocelyne Chiquette
CHU de Québec - Université Laval
Danielle Charpentier
Centre hospitalier de l'Université de Montréal (CHUM)
Mercedes Rouault
Patiente partenaire
Isabelle Roy
Patiente partenaire
Catherine Prady
CISSS de la Montérégie-Centre
Lynn Harvey
Patiente partenaire
Alain Levasseur
Patient partenaire
Amélie Duchesne
Patiente partenaire
Summary
Principal Investigators
Marie-Pascale Pomey
Competition
Priorité Patient 2
Status
Ongoing
Beginning
July 2022
Scheduled End
June 2024
Budget
$200,000